Showing posts with label WVU. Show all posts
Showing posts with label WVU. Show all posts

Wednesday, February 25, 2009

Talking to God

I need to talk to God more. That is such an understatement!!!

Who else could I talk to that understands every pain and every situation in my life? Who has suffered more, done more, seen more, said more? Who else could I turn to that would actually want to hear every last thing I have to say?

Why is it that He's the last one I seem to turn to?

I have to admit I wish I was one of those people who could say, "You know, God told me this," or maybe, "You know, I know God wants me to that...." I know quite a few people that say this, and for awhile I was quite upset with God because I didn't 'hear' Him.

"God, why don't I hear You?"

He must laugh at us, shake His head at us, marvel at our denseness. I know He definitely must have quite a show when watching me! I can imagine Him sitting up in Heaven, and there's something about to be revealed to one of us and He elbows Michael and says, "Watch this, you're going to love this!" I bet He enjoys watching those moments.

But you know, I realized that God 'talks' to me through books and TV. That probably sounds dumb, but I believe it. Every time I need to hear something, I hear it from one of those sources. It never ceases to amaze me how I always hear what I need to hear. Whether it comes from Joyce Meyer, David Jeremiah, heck Dr. Phil, I always hear whatever I need to hear when I need to hear it. It surely makes me realize that in a world full of so many people and so much to tend to, God still remembers me and that makes me special! Hard to even wrap my brain around, but it's true!

I battle so much with feeling like I don't count, I don't matter, I don't make a difference in this world, I'm not important, I'm not special. I know that it stems from how my father treated me and how I saw myself through his eyes. The incredible lack of self-esteem I have and have had my entire life often fuels my depression. The last several weeks have found me wallowing in depression and self pity. I would probably still be there if Pablo hadn't gotten fed up with my doom and called me out on it. Truly, everything was...suck. This sucks, that sucks, everybody sucks, everything sucks, life sucks, I suck.... He had finally had enough and said pretty much hey, get a grip, you have lots to be thankful for, don't get bitter.

I surely felt bitter. I had to head back to WVU to see the same doctor who had put me on that Tramadol and whose office had never even called me back about it. Why? Because my PCP's office said they really didn't want to deal with it, and really didn't even have time to make the appointment! But I've raved about the medical establishment enough, so I'm not giving that any more time. Suffice it to say that I'd had enough medical crap and thought it sucked....

Anyway, all sorts of things were happening around me, and I was letting them pile on top of me instead of dealing with them as I could and looking to God for strength. I actually had three panic attacks last week, and I haven't had those in years! The enemy definitely had me where he wanted me--helpless from being petrified and completely without hope. The devil is not an idiot. He's so good at his job, he knows us so well, way better than we know ourselves. And unfortunately I let him win the last couple of weeks. Well, praise God above He had Pablo smack me in the head, and then sent Joyce Meyer and David Jeremiah to remind me how God works to help us get back from where we've been.

And I hated where I was--no one wants to be miserable and make the people around them miserable. I had just gotten so low that I was below the horizon and ready to about give myself up to misery. Uff, that's not fun, not a fun place to be, not a fun place to stay, and I don't know when you get that low if you have any strength to pull yourself out of it. I truly think that it takes someone else to say, "All right, that's enough, you have to come back to the light." I don't think I had that strength, and unfortunately the only other person I was really talking to besides Pablo was in the same boat I was in. Hard to keep yourself from drowning when another person is drowning beside of you and you keep grabbing onto each other. There's no help in that situation!

I truly want to help others battle these and other struggles. Whether the battle is depression, addiction--which by the way I lost another 1.4 pounds but I think I gained it all back plus more today. I had a day where all I wanted to do was eat. Luckily I don't have a lot of food around now that I can just scarf--gosh I wanted chocolate badly!!! But believe me, I did enough damage with high fiber bread and butter.... But the battle over these kinds of pressures is a difficult one, and one I know we can't handle alone.

I have been a solitary person most of my life. Since I was little--I think in part due to the molestations--I have kept things to myself or tried to figure out how to deal with them on my own. Pablo is the first person I ever really showed my real self to. And boy, it hasn't always been a pretty picture, that's for sure! But, I know what it's like to try to keep all the secrets, all of the battles, everything negative to oneself, and I know the outcome is never good. Even though I thought I was keeping the 'bad stuff' from Pablo over the last several weeks, I showed him the 'bad stuff' that was festering inside of me because of keeping it all in. We need to share our burdens, there's no shame in that, it's what makes us human--and that's not a bad thing!

An old friend wrote to me and said she's read some of my entries and always thought I was happy-go-lucky, and that she never had any idea what was really going on in my life. She was so right, as I did everything I could to make sure people wanted to be around me by being funny or seeming happy. In talking to my counselor I have come to realize that I have 'made' different masks to wear in dealing with people, all stemming from my interactions with my dad, mainly. I have an Entertainer mask that I wear a lot. Of course, the Happy Fat Girl is a pretty common image in the entertainment industry, and why is that? Because we're pretty common. Most of the women I know who have significant weight issues play the Happy Fat Girl role. It makes us pleasing to people who we do not want to consider us unacceptable, and as unacceptable as we feel to ourselves. If we can make someone happy, then maybe they can make us happy, too. Boy, I have a lot more to say about that when it comes to men, but I'll deal with that in another post sometime.

That happy mask is one that I had fairly well glued to my face until I met Pablo. I think he peeled it off...I surely didn't want him to see the real me. I'm so thankful that he did it, but it has been a painful process to try to heal what's underneath. And let me tell you, I'm not anywhere near ready to drop it! I don't know what I really look like underneath. It's weird to think I'm 35 years old and don't really know who I am. I know who I've tried to be, who I've pretended to be, but to let my mask down and just be me? I don't know who I really am, and I don't know how to drop the mask yet. More counseling needed....

Well, I don't know how I ended up here when I was talking about praying to God, but, I guess I needed to go through all of that. When I bring it all around it simply means one thing: I need to pray to God. Over the last couple of weeks I have been beating myself up for not changing, not being a better person, not thinking correctly, not having a good attitude. I was wondering what was wrong with me that I couldn't change. Well, Joyce Meyer was talking about change, and about how we try to change ourselves and others. She said only God can change people, we can't. What we can do, and should do, is do what we can do and pray for God to do those things we simply can't. Well, that was so good to hear because I keep trying to change myself and beat myself up because I don't change. I've been struggling so much with the battle and the worry that I won't ever change. What I haven't been doing is praying to God to change what I can't.

I pray all day long, whenever something comes to mind, but I haven't been very focused in my prayers. I know I need to talk to God and really be honest, and then He will change me in His time according to what I need, not what I think I need. I always beat myself up, too, wondering why I can't keep my mind focused on God and what I know I should do, but then, didn't the Apostle Paul wonder at why he seemed to be able to do the things he didn't want to do, but the things he knew he should do he didn't do? I know I often forget that even the heroes of the Bible were failures in living the life God calls us to. But none of us are perfect, and never will be. I don't know why I think I am the only one who should be and fails at it.

Anyway, bottom line is, I'm thankful for the life I have and I don't want to return to the self pity and depression mode I was in. I have so much that I don't deserve praise God, but then I have so much I need to give that I'm not doing, Lord please help me! I want to serve God but need to quit getting in the way of myself. I need to ask God for help, and ask others for help, because no one on this earth can do everything by themselves. And, if I truly want to change, then I need to seek God's help through prayer, and simply do that which I know to do.

God bless!

:) Jan

Tuesday, February 17, 2009

I'm Getting Worried

I just read my last post, ha, "normal," what a laugh! I guess my "normal" is a constant state of chaos.

Oh, and before I forget, I lost 4 pounds this week which brings my grand total--including last week's weight gain--to 6.5 pounds lost. Not bad.

But seriously, I'm getting worried. I am wondering if I will ever be healthy or something remotely like it, and I'm wondering if there isn't something seriously wrong with my brain.

I've been sick, A LOT. I'm always sick it seems, something's always wrong, hurting, whatever. Since I went to WVU to see the specialist it's been insanely worse. Today I nearly killed myself and my mom. I was driving home from the doctor's office and all the sudden I realized there was a car stopped in front of me. God sent my angels to steer that car because there's no humanly way I could have made it move that smoothly around the other car without help. I was so scared, I have no idea where my brain was that I didn't notice the car in front of me.

I can't help but wonder if that Tramadol really messed me up. Now granted I have a sinus infection right now and that makes me feel crappy, but gosh, I can't believe how "not there" my brain is. I'm forgetting things left and right, I can't think straight, I get dizzy still. Until this infection is cleared up I can't be certain, but I'm concerned indeed.

I'm also concerned that I'm never going to get off this track I'm on. I feel like I'm getting nowhere. I feel like I'm hanging by the end of my rope, and no matter how much I struggle I can't seem to reach for anything. I'm so frustrated!!! I can't seem to make things happen. The day goes by so quickly and I don't get anything accomplished. I practically cheer when I get some silly little thing done. I can't come up with hardly any new ideas or things to try. Have I crossed over some invisible line from a place from which I cannot return?

Now, I went to college at Ohio University. Anyone who is remotely familiar with it knows that it was once regarded as THE party school and held that title for years until it was officially retired from the list. I was far from a party animal, but I did my fair share of drinking. I know I killed some brain cells there. I often marvel, it's a good thing that dead brain cells don't fall out of our heads and pile up because Athens, Ohio would have been buried decades ago!

Besides losing those precious cells I have had some very high blood sugar readings from my diabetes. We're talking 500-800. And unfortunately I carried those scores for several years before finally getting it under control. I know that those kinds of numbers are very dangerous, and I know that when they were really high I wouldn't have much of a brain left.

When you couple all of this with fibromyalgia's infamous "brain fog" I'm wondering if maybe I'm not completely screwed? I've talked to quite a few fibro sufferers and that one thing seems to be a common complaint. I don't know how anyone else would really explain it, but I feel like I just can't quite get "the point" sometimes. Like there's no clarity, no matter how hard I "sits and thinks" I can't seem to come up with something with a lot of substance. I could be the proverbial tail-chasing cat. If I had a tail I know I'd go for it. I can't seem to make 'headway' in my brain--all puns ARE intended.

I'm SO frustrated!!!

It actually used to be worse. I used to drink & eat so-called "diet" things that contained aspartame. I couldn't seem to keep a thought in my head. Something simple like recalling what a hood on a car is called, "You know, that thing that lifts up and down that's on your car and all the parts are under it...?" Egad, I remember that conversation so clearly. Though I can't be certain if that's what it was actually. Now that I think about it, that happened not too long before I was diagnosed with fibro. But then, I think my mind seemed to improve after I stopped the aspartame. Oh well, no matter, I won't go back to the stuff. I'm hoping to become chemical-free one of these days!

My friends have to think I'm about an idiot. Every time we turn around I screw up something, can't think, say something stupid, and it's like watching a train wreck happen. I hate it. I truly, truly hate it. I used to be smart, maybe not a lot of sense--see marriage/divorce--but smart. And now I feel like a fool most of the time. Have I damaged my brain? Is there something I'm not doing that I could do that would make a difference? Is there any hope? Or is this simply a time in my life when my brain is just taking a little vacation from all the crap that has been happening?

I truly feel overwhelmed. It seems like everything in my life is wrong. It feels like everything that I try fails, and things I need to try I never see. I'm wondering what the future holds. Is the old me really gone, never to return? In most instances that would be good as there are many things I would not want to go back and pick up. But I have to say I'm really concerned my brain is drastically different than it used to be.

One of my favorite little cutesy sayings is: "Sometimes I sits and thinks, and sometimes I just sits." It's starting to not be so cute to me, it's becoming too real.

:) Jan

Thursday, February 5, 2009

The Medical Establishment Sucks

I'm so sick of it, sick of getting no help from the people who are supposed to be giving it!!!

As you may know, I've been complaining of headaches. I have one right now, in fact, and sitting here staring at this white screen will indeed make it worse, but I'm hoping I can get this off of my chest quickly. Well, my friend Jen said to me over the weekend, "You know, you said the other day you hadn't had any headaches or migraines for awhile, but you've been having them a lot lately. Do you think it's because of the Tramadol?"

--- light bulb ---

Derh. Yes. So I reread the info that came with the prescription and it said that if blah, blah, blah, call your doctor immediately.... So, it was after hours, so I emailed my PCP about what was going on. I figured she would tell me to call the specialist I saw at WVU, but the WVU specialist told me to talk to my PCP first. So, what do you think I heard when I picked up the phone from my PCP's office?

"You need to call the doctor at WVU."

Quelle surprise. Not.

So I called WVU...and they never called back. So I called the next day...and they never called back. Never called back. So I called my pharmacist and he told me what to do in order to get off of them safely. And they have still not called.

I've had it.

And I'm not going to let it go this time.

I think this may be one thing I'm supposed to do--fight the system and change it.

And by cracky, I want to. No one should be treated--or not treated in this case--this way!!! What is wrong with the Medical Establishment that they have stopped health CARE? I think there's a lot going on behind the scenes: the love of money--the fear of lawsuits--the pressure from insurance companies.

The Love of Money
Let's pack as many patients into one day as possible, and "treat" them as quickly as possible. I have so many things going on with me, and so many prescriptions that I have to write things down in order to remember them. My PCP actually told me once I could pick two, that's all she had time for. My mom's dog gets more time at the vet.

The Fear of Lawsuits
They're everywhere on TV: Call the law offices of So-&-So, they'll sue Such-&-Such and get you the settlement you deserve. Doctors are playing the C.Y.A. game--cover your assets. They don't want to get sued, so they do as little as possible to get by with.

The Pressure from Insurance Companies
Insurance companies call the shots. I used to joke with my PCP--when there was time--that I should just go see the insurance company and then they'd let her know what was wrong with me. I'm thinking I might get somewhere quicker if I did just that! But I think the enormous pressure they put on doctors and hospitals is a big reason why CARE has been left out of the health industry.

Well, as I feared, my headache has increased and I'm shaking again so I will need to quit so I can go do what my pharmacist recommended so that my head won't explode from a @#&$@&$ headache no thanks to some lousy doctors. I'm not through, this is wrong. This is so wrong and I can't imagine what it's like to be someone who is gravely ill, what must sub-standard care feel like to someone that desperate? Oh, I don't want to find out, but I know I need to add all of them to my prayer list!

And by the way, I know there must be some awesome doctors out there, but when I consider the nearly dozen I have to deal with for my care...they are SO not around here! And boy, do I wish they were!!!!!

:) Jan